A look back at some of the highlights from our first year, 2024!
💚 Awareness | Advocacy | Information | Support | Research and Education | Collaboration 🧡
Awareness
FND Ireland delivers first ever in person patient led session on FND in the country to Louth Civil Defence in February. Our founder Eamon McPartlin was joined by our FND Awareness Ambassador, Aimee Campbell and Professor Siobhan MacHale.
Advocacy
FND Ireland delivers first ever presentation to Oireachtas members on FND in Leinster House in April. Our team on the day of our co-founder Dr Aoife Laffan, our founder Eamon McPartlin and our FND Awareness Ambassador, Aimee Campbell are pictured with Senator Erin McGreehan who hosted the event, Minister Anne Rabbitte and Michael Moynihan TD.
Information
FND Ireland launches the first ever Irish FND website www.fnd.ie in April along with it’s social media platforms. Thanks to the team at Cahir Media for their invaluable support and commitment to make this possible.
Support
FND Ireland facilitated the first ever in person peer support meeting in Ireland for those living with FND including their family members and carers in Leitrim in June. Over 100 people attended our meetings throughout 2024 in Leitrim, Galway, Cork, Dublin and Kildare.
Education and Research
FND Ireland sets up the first FND Advocacy, Education & Research Committee in Ireland in September which is chaired by Dr Aoife Laffan, Consultant Neurologist and co-founder of FND Ireland. The committee brings together healthcare professionals and academics partnering with patients to advance FND treatment, education and research.
Collaboration
Our founder, Eamon McPartlin was a member of a group of lived experience representatives who had the opportunity through the Neurological Alliance of Ireland to input into the drafting of the ‘My Neuro’ patient experience survey which included Ireland for the first time in 2024. The results of the survey will be published in April 2025.
