About Us
FND Ireland is the first Irish charity dedicated to advocating for and supporting those living with Functional Neurological Disorder (FND) in Ireland.
We are an entirely voluntary organisation with a committed team that plans to grow into the future and extend our reach to the entire FND community in Ireland.
Our story
After being diagnosed with motor FND in 2021 our founder Eamon McPartlin realised there was no Irish FND support organisation. Given Eamon’s background in advocacy he became a peer support volunteer with a global FND charity and got them to set up in 2022 a closed Facebook group and monthly online peer support meetings for Ireland. In early 2023 Eamon stepped away from this global FND charity to concentrate on his advocacy role with the Neurology Support Centre in Sligo.
Over the next few months many people living with FND contacted Eamon and it became clear there was a need for a dedicated Irish FND advocacy and support organisation. With the support of Dr. Aoife Laffan, Consultant Neurologist, St James Hospital, Dublin and Catherine Cummins, the mother of a teenager daughter with FND, FND Ireland was set up and registered as a not for profit company limited by guarantee at the end of 2023.
Our mission
Our mission is to advocate for better awareness and clinical advancements, promote research and provide support to those living with FND in Ireland.
Our vision
Our vision is a society that understands FND, where those living with FND experience a better quality of life.
Our Team
Joan Johnston - Executive Director
Joan Johnston is an experienced healthcare and nonprofit leader with over 20 years across physiotherapy, chronic disease management, charity leadership, and national advocacy. She became Executive Director of FND Ireland in January 2026, bringing a strong record of strengthening national patient organisations, advancing integrated care, and embedding lived experience in health‑system reform. As a parent of a child with a rare neurogenetic condition involving epilepsy, functional seizures, and complex developmental needs, she also carries personal insight into the challenges faced by people living with FND.
Before joining FND Ireland, Joan spent almost six years as General Manager of COPD Support Ireland, leading strategic development. She secured the organisation’s first HSE service level agreement enabling the expansion of its national network of COPD support and exercise groups. She also strengthened the organisation’s public profile, acting as national spokesperson and leading high‑impact awareness and education campaigns.
Originally trained as a physiotherapist, Joan worked across acute, respiratory, and community services before moving into leadership roles. As Executive Director of FND Ireland, she now leads strategy, advocacy, and public engagement, ensuring lived experience shapes service design and delivery.
Our Voluntary Board of Directors/Trustees
Eamon McPartlin - Founder, Chair & Director/Trustee
Eamon’s professional background is in engineering and he has a special interest in accessibility of the built environment. Eamon was diagnosed with motor FND in 2021 and also lives with another neurological condition called Dystonia. He has a passion for advocacy, peer support and research which is advanced by his ‘lived experience’
Eamon gained experience in patient advocacy and peer support through his roles as an advocate with Dystonia Ireland and as a peer support volunteer with a global FND charity. He gained valuable insight of the not for profit sector supporting those with neurological conditions when he was appointed to the board of the Neurology Support Centre in Sligo.
Eamon is an active HSE patient partner at both regional and national level. He is a member of a number of steering groups including the HSE National Neuro-rehabilitation Workstream Groups. Eamon has also contributed to research ‘focus groups’ such as the Neurological Alliance of Ireland report examining the consequences of the Covid-19 pandemic on access to neurological services in Ireland.
Catherine Cummins - Co-Founder & Director/Trustee
Catherine’s daughter was diagnosed with FND in 2021 at 15 years of age. Catherine met Eamon through her daughter’s advocacy for FND at the BT Young Scientist. Since then both Catherine and her daughter have given presentations on FND to both local Child and Adolescent Mental Health Services (CAMHS) teams and at the national CAMHS psychologists conference.
Catherine’s early professional career was in retail management before moving on to study early childhood education. She currently manages a small preschool where she is setting up an after-school service. As her preschool is a registered charity, she has also gained valuable experience in the running of a not for profit organisation.
Catherine volunteered for a short time with a global FND charity before joining Eamon in setting up FND in Ireland. Catherine wants to use her experience as a parent of a young daughter with FND to reach out to other parents and family members and is passionate in advocating for early intervention to support those living with FND.
Dr. Aoife Laffan - Co-Founder & Director/Trustee
Dr. Laffan is a Consultant Neurologist at St. James’s Hospital with a primary role in Long Covid Neurology and has been the Clinical Lead for the development of Long Covid Neurological services in Ireland. Dr. Laffan qualified from UCD in 2007. In 2012, she completed her MD thesis on autonomic function in epilepsy. Dr. Laffan completed her specialist training in Ireland and went on to complete two Aspire Fellowships; the first in deep brain stimulation for movement disorders at the Mater Hospital and second, in epilepsy and chronic disease management at St. James’s Hospital.
Dr. Laffan’s specialist interest is in Functional Neurological Disorder (FND) and she has spent time with Professor Jon Stone and his team in Edinburgh. She is a founding member of the Functional Neurological Disorder Society, an international group aiming to improve the diagnosis and treatment of patients with FND. She is the clinical lead for FND in Ireland, working to develop a service which would be the first of its kind in the Country.
Jackie Gallagher - Director/Trustee
Jackie joined the board of FND Ireland as director in August 2024. Jackie’s background is in the area of youth and community work. She has extensive experience working in the area of family support and more recently in disability services. Jackie really values the importance of peer support and a safe environment for people to access support and be treated with empathy and compassion. Research has shown the benefits of peer support is vital to allow people to build up links with people with similar lived experience, some of the outcomes include improved mental health and overall health outcomes and is a valuable resource in managing lifelong conditions.
Jackie became aware of FND in April 2023 when her then 14 year old daughter was diagnosed with FND. The past year has been a battle in trying to access support and services for a teenager. As a parent Jackie really would like to see the development of support and services for teenagers with FND and for those caring for them. She wants greater awareness of FND within the healthcare sector and for teenagers with FND to be encouraged to advocate for their own needs.
Colm Farrell – Secretary & Director/Trustee
Colm is delighted to be joining the board of FND Ireland in May 2025. Colm’s background is in financial management and corporate governance. He has over 25 years’ experience working in the public and private sector across several different industries. He was previously Chief Financial Officer of an Irish renewable energy business. Colm is a Fellow of the Association of Chartered Certified Accountants. His experience will be very valuable to oversee our regulatory and governance compliance.
Our Featured Volunteers
Dr. Owen Killian – Education Liaison
Dr. Owen Killian joined the FND Ireland team as Education Liaison in September 2024. Owen is a Neurology SpR and ICAT fellow currently pursuing a PhD in St. Vincent‘s University Hospital. Owen has a special interest in movement disorders and Functional Movement Disorder. His research focuses on uncovering the mechanisms underlying brain network disorders that affect motor control, including Dystonia and Functional Neurological Disorder (FND).
Owen has been passionate about neurology education in general and FND education in particular for a number of years having delivered practical courses and lectures for medical students and psychology students on the clinical presentations, mechanisms, and management of FND.
Owen is focused on developing the educatonal efforts of FND Ireland so as to enable the better understanding of FND by health care professionals in ireland.
Daniel McCabe – Research Liaison
Daniel McCabe, a clinical neuroscience doctorate researcher at Queen’s University Belfast’s School of Psychology, joined FND Ireland as Research Liaison in September 2025. He also works for the Belfast Health and Social Care Trust (BHSCT) as an associate psychologist in clinical psychology.
Daniel’s research investigates how the dynamic interactions of sensorimotor, interoceptive, attentional, behavioural, and emotional processes contribute to the development, maintenance, and rehabilitation of Functional Neurological Disorder. The aim of his work is to advance neurorehabilitation approaches, minimise dysfunction, and deepen a theoretical understanding of FND.
More broadly, Daniel’s academic and clinical interests centre on the relationship between the brain and mind, approached through historical, philosophical, neuroscientific, and neuropsychological lenses. He is particularly committed to translating research into clinical practice.